This is a curated list of trusted, non-commercial organizations and resources for individuals with epilepsy and their loved ones. If you have a suggestion for this list, please contact the moderators.
Major Epilepsy Organizations
- Epilepsy Foundation (EF): The leading national organization for epilepsy awareness, education, and support in the U.S. (https://www.epilepsy.com/) Their site includes information on seizure types, diagnosis, treatment, and local resources.
- 24/7 Helpline: 1-800-332-1000 (English & Spanish)
- CURE Epilepsy: A non-profit dedicated to funding patient-focused research to find a cure for epilepsy. (https://www.cureepilepsy.org/) Excellent for information on the latest scientific advancements.
- American Epilepsy Society (AES): A society of professional investigators and clinicians.(https://www.aesnet.org/) While geared towards professionals, their site is a good source for news on cutting-edge research and treatment guidelines.
Seizure First Aid & Safety
- Official Seizure First Aid Guide (Epilepsy Foundation): Learn the simple, life-saving steps of “Stay, Safe, Side.” (https://www.epilepsy.com/recognition-response/first-aid-resources) This is essential knowledge for everyone.
- Danny Did Foundation: Focused on preventing deaths caused by seizures, particularly SUDEP (Sudden Unexpected Death in Epilepsy).](https://www.dannydid.org/) A vital resource for information on seizure monitoring technology and safety devices.
Support & Community Resources
- Child Neurology Foundation: Provides support and resources for children and families navigating neurological conditions.](https://www.childneurologyfoundation.org/)
- Epilepsy Foundation – Find Your Local Chapter: Connect with resources, events, and support groups in your specific area.](https://www.epilepsy.com/local)